Bases para una propuesta de alfabetización en salud de niños con enfermedad renal crónica

Abstract

Abstract The current paper presents the results of a diagnostic study whose purpose was to document the experiences of children and adolescents who are suffering from chronic kidney disease, as well as the experiences of their mothers; the objective was to use an inter and transdiscplinary approach to design a health literacy strategy in order to improve both health services and quality of life. In order to compile the necessary information, we used oral and written narratives, as well as focus groups. For the analysis of the information, we used proposals based on sociocultural and interpretive perspectives. Our results demonstrate that the main difficulties of this group are associated with emotions (sadness, anger, despair), the commitment to the treatment and the process of the acceptance of death. The results allow us to identify the elements that should be considered within a strategy for health literacy relevant to the population analyzed.